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continent: NA, country: United States (USA), city: San Francisco
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title: The Squashed Bologna: a slice of life in the sandwich generation
description:
keywords:
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language: en
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B tags
The Bucket and the Mandrake: Two Small Stories, One Big Lesson
Looking for comments?
Walking the Line
Tribes
U tags
I tags
Today, SNSS is going hyper-local. My
guest today, Michaela Searfoorce
, is someone I actually met first in real life and not the bloggosphere. (What? It happens!) She lives in my neighborhood and our sons were in the same special needs "challenger division" basketball league.
Furthermore Michaela is a major force in the New York City Upper West Side Special Needs Parenting community. I had found out about the basketball league at one of the regular monthly informational meetings that Michaela organizes.
Her blog The Foorce
(a fun play on her name) is mostly focused on providing support and resources for our local New York City special needs community, but is also a place where Michaela shares some of her personal story from time to time.
She is the mother of three children: 11 year-old James and his two young sisters. James has a rare chromosome defect which has resulted in numerous medical issues, global developmental and physical delays, and labels such as PDD-NOS, Sensory Integration Dysfunction and ADD.
Chances are, if you have a special needs child(ren), they have at least something in common with James. I can tell you firsthand he is a delightful boy with a huge heart and I was always happy when he and Jake were paired up together in basketball practice.
Read on, now, for a glimpse into Michaela's wonderful family, a pair of life-slices that add up to a beautiful thought:
Reading this lovely post, I found myself once again wishing I had somehow
been
magically able to provide Jake with a little sister to look up to and after him.
And then I read some of Michaela's "Patience and Foortitude" posts on her blog about the challenges of life with a big special needs kid, a toddler and a baby... and I rethought that one.
Having had a little glimpse into
Michaela
's family here, you should definitely follow her home to her blog, The Foorce
, to read more. If you are New York City local, read it all, there's some great resources there. If you're from elsewhere and want to skip the local stuff,, the posts in the "General" category are where you'll find the personal, family ones.
Start here with this one, about a particularly exhausting evening:
Patience and Foortitude, Part 3: Just Foortitude This Time, With Special Guest Appearance By Windex
(and yes, I've finally found someone who makes my often long post titles seem pithy).
Also, try this post about a milestone - riding a Ferris Wheel - that may seem small to some, but we special needs parents know better. Or this one, a letter of appreciation on James's 11th birthday.
Finally, if you want further proof of what a supermom Michaela is, read this pair of posts about James's
heartbreaking
massive "poop incident" at his school (due to his medical issues) and how his mom talked to his inclusion class about it (and answered other questions about James' differences) so that he would be safe retuning to the school, afterward.
Thank you so much,
, for sharing your wonderful son James, and the rest of your lovely, special family with us today.
Looking for comments? To read or leave a comment, click on THIS post's title, or HERE, to bring you to the post's page view. Comments should appear below.
I don't know how to properly introduce today's SNSS guest blogger, to convey her awesomeness. She is Amy Hillis of the blog Transplanted Thoughts.
Amy is an amazing mother and a wonderful, moving writer. She has also been through more tragedy than any other person I know, and somehow still finds life entertaining and amusing.
What do I mean by tragedy? Amy has had seven children. Five of them are still living. The other two have been lost to the same rare genetic disorder that affects two out of her three still living younger children (the eldest two, from her first marriage, are now grown).
When Amy began her blog, her youngest son David was sickly, but still alive, and those of us who read her followed along with his final days, filtered through Amy's anguished posts. He spent the last 5 months of his short life in the hospital, his mother by his side.
Theirs is obviously an intense environment, and yet Amy works hard to bring much balance and order, normalcy, joy and a sense of purpose into their lives.
Read Amy's moving words, here, now, as she
writes about the sometimes rocky relationship between Jacob, her unaffected son and his just-a-bit-younger brother, Jonathan, who is often ill:
I am often amazed by Amy, how she carries on with life amidst the loss. She feels and acknowledges her sadness but isn't engulfed and destroyed by it, somehow manages to be there, fully present for her still living children who need their mother as much as ever.
What is most inspiring about her is her realness, and her willingness to share that with her readers. We see that she is some days sad and mad but also loving, humorous and even grateful.
Now that you have read Amy here, you are surely going to want to follow her home to her
blog Transplanted Thoughts and read more of her family's story and her beautiful writing.
If you want to know about what happened to her first son with citrullinemia
who lived only 5 days as the doctors puzzled out what was wrong with him, read this post here: Introductions
For an incredibly touching and sad moment when Amy's son talks with her about missing his baby brother David, and wants to make sure he is being looked after in heaven, read this one: Moon Talk
(warning have hanky ready).
And then, because her tag line IS "Life's still funny" try this funny post about her sons' Sailor-speak (something I think all of us with boys will relate to).
Amy would also like it if you would come stalk her on Twitter, where she tweets as @transplantedx3 and on her Facebook Fan page,
Thank you so much Amy, for bringing your beautiful words to SNSS today.
This post was written in response to a prompt from Write on Edge to paint the picture of a place (real or imaginary) in our mind, and then use words to paint it for our readers. So I chose a place that was both.
images
file name | alternative text |
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icon18_wrench_allbkg.png | |
SNSS+LOGO+.png | Just Write |
icon18_email.gif | I am Squashed! |
icon18_edit_allbkg.gif | My Photo |
6144223072_aba44084aa_m.jpg | The Cement Worker, 1955 .... This is one of my father's most well known photographs. |
pouryourheartout.jpg | My Dad, Jim Steinhardt 1917-2010 |
Hopeful+Logo+for+Website-1.gif | The Squashed Cast: |
redWritingHoodButton.jpg | Thank You! |
recruitbutton.jpg | Vote for Me! (Please) |
FINGER1-R1-052-24A_1.jpg | If you read ONE post of mine, this: |
me+square1.jpg | Read me on the 10th of every month at: |
ShabbyBlogsFollow-1.jpg | I was syndicated on BlogHer.com |
cement.jpg | I finally have a button! |
Jim+Steinhardt+at+20.jpg | And Here: |
J+%26+S+sharp+crop.JPG | Five Star Friday |
Ethan%2BSpring%2B11.jpg | And Here |
Jacob%2BSpring%2B11.jpg | And here: |
DSCN1838.JPG | Saturday Sampling |
2011_VoY_125x125_Finalist.gif | Mama |
Babble%2B25.png | #SOCsunday |
zoo.jpg | Jenny Matlock |
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headers
H1
H2
Pages
Saturday, October 15, 2011
Wednesday, October 12, 2011
Tuesday, October 11, 2011
Saturday, October 8, 2011
Friday, October 7, 2011
Wednesday, October 5, 2011
Tuesday, October 4, 2011
I am Squashed!
About Me
Followers
The Cement Worker, 1955 .... This is one of my father's most well known photographs.
My Dad, Jim Steinhardt 1917-2010
The Squashed Cast:
Blog Archive
Labels
Thank You!
Vote for Me! (Please)
If you read ONE post of mine, this:
Read me on the 10th of every month at:
I am now:
Follow by Email
Subscribe To The Squash
I finally have a button!
I Have Guest Blogged Here:
And Here:
I've been linked here on 2-3-11, 3-4-11, 4-22-11, 5-5-11, 7-8-11, & 9-30-11
And Here
And here:
Some of the Blogs I Like to Read: (also click on my Blog Roll tab for longer list)
I am a:
I participate in:
I am a member of:
I support:
Thanks to:
H3
Pages
Saturday, October 15, 2011
Wednesday, October 12, 2011
Tuesday, October 11, 2011
Saturday, October 8, 2011
Friday, October 7, 2011
Wednesday, October 5, 2011
Tuesday, October 4, 2011
I am Squashed!
About Me
Followers
The Cement Worker, 1955 .... This is one of my father's most well known photographs.
My Dad, Jim Steinhardt 1917-2010
The Squashed Cast:
Blog Archive
Labels
Thank You!
Vote for Me! (Please)
If you read ONE post of mine, this:
Read me on the 10th of every month at:
I am now:
Follow by Email
Subscribe To The Squash
I finally have a button!
I Have Guest Blogged Here:
And Here:
I've been linked here on 2-3-11, 3-4-11, 4-22-11, 5-5-11, 7-8-11, & 9-30-11
And Here
And here:
Some of the Blogs I Like to Read: (also click on my Blog Roll tab for longer list)
I am a:
I participate in:
I am a member of:
I support:
Thanks to:
H4
H5
H6
internal links
address | anchor text |
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http://www.squashedmom.com/ | Home is where the blog is |
http://www.squashedmom.com/p/best-squash.html | Best Squash |
http://www.squashedmom.com/p/i-get-around.html | I Get Around |
http://www.squashedmom.com/p/about-squashed-mom.html | Meet Squashed Mom |
http://www.squashedmom.com/p/why-squashed.html | Why Squashed? |
http://www.squashedmom.com/p/talk-to-squashed-mom.html | Talk to the Squashed Mom |
http://www.squashedmom.com/p/blog-roll.html | Bologna on a Blog Roll |
http://www.squashedmom.com/p/alphabet-posts.html | The Alphabet Posts |
http://www.squashedmom.com/p/sibling-slice-snss-guests.html | Sibling Slice: SNSS Guests |
http://www.squashedmom.com/p/legal.html | Boring Legal Stuff |
http://www.squashedmom.com/p/your-bologna-comments-policy.html | Your Bologna (Comments Policy) |
http://www.squashedmom.com/2011/10/snss-bucket-and-mandrake.html | SNSS: The Bucket and the Mandrake |
http://www.squashedmom.com/search/label/Special%20Needs%20Sibling%20Saturdays | img |
http://www.squashedmom.com/2011/10/snss-bucket-and-mandrake.html | HERE |
http://www.squashedmom.com/2011/10/snss-bucket-and-mandrake.html | 12:01 AM |
http://www.squashedmom.com/search/label/Autism%20Spectrum | Autism Spectrum |
http://www.squashedmom.com/search/label/Genetic%20Disorders | Genetic Disorders |
http://www.squashedmom.com/search/label/Guest%20Posts | Guest Posts |
http://www.squashedmom.com/search/label/PDD-NOS | PDD-NOS |
http://www.squashedmom.com/search/label/Sensory%20Processing%20Disorder | Sensory Processing Disorder |
http://www.squashedmom.com/search/label/Siblings | Siblings |
http://www.squashedmom.com/search/label/SNSS%20Guest%20Post | SNSS Guest Post |
http://www.squashedmom.com/search/label/Special%20Needs%20Sibling%20Saturdays | Special Needs Sibling Saturdays |
http://www.squashedmom.com/2011/10/3-am.html | 3 AM |
http://www.squashedmom.com/2011/10/3-am.html | HERE |
http://www.squashedmom.com/2011/10/3-am.html | 12:01 AM |
http://www.squashedmom.com/search/label/Eldercare | Eldercare |
http://www.squashedmom.com/search/label/ER%20Stories | ER Stories |
http://www.squashedmom.com/search/label/Just%20Write | Just Write |
http://www.squashedmom.com/search/label/My%20Mother | My Mother |
http://www.squashedmom.com/search/label/Pour%20Your%20Heart%20Out | Pour Your Heart Out |
http://www.squashedmom.com/search/label/Sleep | Sleep |
http://www.squashedmom.com/2011/10/looking-down-road-at-hopeful-parents.html | Looking Down the Road at Hopeful Parents |
http://www.squashedmom.com/2011/10/looking-down-road-at-hopeful-parents.html | HERE |
http://www.squashedmom.com/2011/10/looking-down-road-at-hopeful-parents.html | 10:26 AM |
http://www.squashedmom.com/search/label/ER%20Stories | ER Stories |
http://www.squashedmom.com/search/label/Guest%20Posting%20Today | Guest Posting Today |
http://www.squashedmom.com/search/label/Hopeful%20Parents | Hopeful Parents |
http://www.squashedmom.com/search/label/I%20am%20Squashed | I am Squashed |
http://www.squashedmom.com/search/label/Sandwich%20Generation | Sandwich Generation |
http://www.squashedmom.com/search/label/The%20Future | The Future |
http://www.squashedmom.com/2011/10/snss-walking-line.html | SNSS: Walking the Line |
http://www.squashedmom.com/search/label/Special%20Needs%20Sibling%20Saturdays | img |
http://www.squashedmom.com/2011/10/snss-walking-line.html | HERE |
http://www.squashedmom.com/2011/10/snss-walking-line.html | 10:36 PM |
http://www.squashedmom.com/search/label/Genetic%20Disorders | Genetic Disorders |
http://www.squashedmom.com/search/label/Siblings | Siblings |
http://www.squashedmom.com/search/label/SNSS%20Guest%20Post | SNSS Guest Post |
http://www.squashedmom.com/search/label/Special%20Needs%20parenting | Special Needs parenting |
http://www.squashedmom.com/search/label/Special%20Needs%20Sibling%20Saturdays | Special Needs Sibling Saturdays |
http://www.squashedmom.com/2011/10/dream-city.html | Dream City |
http://www.squashedmom.com/2011/10/dream-city.html | HERE |
http://www.squashedmom.com/2011/10/dream-city.html | 1:22 AM |
http://www.squashedmom.com/search/label/dreams | dreams |
http://www.squashedmom.com/search/label/memory | memory |
http://www.squashedmom.com/search/label/Red%20Writing%20Hood | Red Writing Hood |
http://www.squashedmom.com/search/label/Write%20on%20Edge | Write on Edge |
http://www.squashedmom.com/2011/10/im-in-katies-army-now.html | I'm in Katie's Army now |
http://www.squashedmom.com/2010/12/i-fear-i-make-terrible-guest.html | I Fear I Make a Terrible Guest |
http://www.squashedmom.com/2011/10/im-in-katies-army-now.html | HERE |
http://www.squashedmom.com/2011/10/im-in-katies-army-now.html | 10:30 PM |
http://www.squashedmom.com/search/label/ADD | ADD |
http://www.squashedmom.com/search/label/Community | Community |
http://www.squashedmom.com/search/label/Guest%20Posting%20Today | Guest Posting Today |
http://www.squashedmom.com/search/label/Sometimes%20I%20am%20Add-rific | Sometimes I am Add-rific |
http://www.squashedmom.com/search/label/Support%20and%20Community | Support and Community |
http://www.squashedmom.com/2011/10/blink.html | Blink |
http://www.squashedmom.com/2011/10/blink.html | HERE |
http://www.squashedmom.com/2011/10/blink.html | 11:00 PM |
http://www.squashedmom.com/search/label/Looking%20Backwards | Looking Backwards |
http://www.squashedmom.com/search/label/Love | Love |
http://www.squashedmom.com/search/label/memory | memory |
http://www.squashedmom.com/search/label/My%20boys%20are%20growing%20up | My boys are growing up |
http://www.squashedmom.com/search/label/waxing%20lyrical | waxing lyrical |
http://www.squashedmom.com/search?updated-max=2011-10-04T23%3A00%3A00-04%3A00&max-results=7 | Older Posts |
http://www.squashedmom.com/ | Home |
http://www.squashedmom.com/feeds/posts/default | Posts (Atom) |
http://www.squashedmom.com/search?updated-min=2011-01-01T00%3A00%3A00-05%3A00&updated-max=2012-01-01T00%3A00%3A00-05%3A00&max-results=50 | 2011 |
http://www.squashedmom.com/2011_10_01_archive.html | October |
http://www.squashedmom.com/2011/10/snss-bucket-and-mandrake.html | SNSS: The Bucket and the Mandrake |
http://www.squashedmom.com/2011/10/3-am.html | 3 AM |
http://www.squashedmom.com/2011/10/looking-down-road-at-hopeful-parents.html | Looking Down the Road at Hopeful Parents |
http://www.squashedmom.com/2011/10/snss-walking-line.html | SNSS: Walking the Line |
http://www.squashedmom.com/2011/10/dream-city.html | Dream City |
http://www.squashedmom.com/2011/10/im-in-katies-army-now.html | I'm in Katie's Army now |
http://www.squashedmom.com/2011/10/blink.html | Blink |
http://www.squashedmom.com/2011/10/snss-fragile-brothers-strong-sister.html | SNSS: Fragile Brothers, Strong Sister |
http://www.squashedmom.com/2011_09_01_archive.html | September |
http://www.squashedmom.com/2011/09/x-is-for-xenophilia.html | X is for Xenophilia |
http://www.squashedmom.com/2011/09/wordless-wednesday-boys-baseball.html | Wordless Wednesday: Boys & Baseball |
http://www.squashedmom.com/2011/09/shoot-me-now-singing-health-insurance.html | Shoot Me Now (singing the health insurance idiocy ... |
http://www.squashedmom.com/2011/09/choosing-kindness.html | Choosing kindness |
http://www.squashedmom.com/2011/09/snss-tale-of-two-brothers.html | SNSS: A Tale of Two Brothers |
http://www.squashedmom.com/2011/09/wanted.html | Wanted |
http://www.squashedmom.com/2011/09/sand-trap-weekend.html | Sand Trap Weekend |
http://www.squashedmom.com/2011/09/blog-gems-school-daze.html | Blog Gems: School Daze |
http://www.squashedmom.com/2011/09/snss-noah-my-brother.html | SNSS: Noah, my Brother |
http://www.squashedmom.com/2011/09/and-thats-why-im-twit.html | ...and that's why I'm a Twit |
http://www.squashedmom.com/2011/09/imagining-unimaginable.html | Imagining the unimaginable |
http://www.squashedmom.com/2011/09/other-twins.html | The Other Twins |
http://www.squashedmom.com/2011/09/hopeful-about-my-fledgling.html | Hopeful about my fledgling |
http://www.squashedmom.com/2011/09/u-is-for-uncharted-territory.html | U is for Uncharted Territory |
http://www.squashedmom.com/2011/09/wordless-wednesday-89-years-young.html | Wordless Wednesday: 89 Years Young |
http://www.squashedmom.com/2011/09/childhood.html | Childhood |
http://www.squashedmom.com/2011/09/blog-gems-make-me-laugh.html | Blog Gems: Make Me Laugh |
http://www.squashedmom.com/2011/09/snss-how-will-they-know.html | SNSS: How Will They Know? |
http://www.squashedmom.com/2011/09/i-was-styled-at-blogher.html | I was Styled At BlogHer! |
http://www.squashedmom.com/2011_08_01_archive.html | August |
http://www.squashedmom.com/2011/08/not-my-best.html | Not my best |
http://www.squashedmom.com/2011/08/goodnight-irene.html | Goodnight Irene |
http://www.squashedmom.com/2011/08/snss-its-just-not-fair.html | SNSS: It’s Just Not Fair |
http://www.squashedmom.com/2011/08/beside-myself.html | Beside Myself |
http://www.squashedmom.com/2011/08/wordless-wednesday-what-i-did-on-my.html | Wordless Wednesday: What I Did on My Summer Vacati... |
http://www.squashedmom.com/2011/08/five-days-of-empty-nest.html | Five days of empty nest |
http://www.squashedmom.com/2011/08/blog-gems-at-summers-end.html | Blog Gems at Summer's End |
http://www.squashedmom.com/2011/08/five-months-of-special-needs-sibling.html | Five Months of Special Needs Sibling Saturdays |
http://www.squashedmom.com/2011/08/written-on-bathroom-walls.html | Written on Bathroom Walls |
http://www.squashedmom.com/2011/08/missing-my-father.html | Missing my Father |
http://www.squashedmom.com/2011/08/soc-sunday-colorblind.html | SOC Sunday: Colorblind |
http://www.squashedmom.com/2011/08/snss-when-brothers-love-hurts.html | SNSS: When a Brother's Love Hurts |
http://www.squashedmom.com/2011/08/my-one-year-anniversary-as-hopeful.html | My One Year Anniversary as a Hopeful Parent |
http://www.squashedmom.com/2011/08/its-almost-my-birthday-and-ill-post-if.html | It's (almost) my Birthday, and I'll post if I want... |
http://www.squashedmom.com/2011/08/blog-gems-rolls-on.html | Blog Gems Rolls On! |
http://www.squashedmom.com/2011/08/snss-unusual-is-not-word.html | SNSS: Unusual is not the word! |
http://www.squashedmom.com/2011/08/wordless-wednesday-birthday-cakes.html | Wordless Wednesday: Birthday Cakes & Flying Balloo... |
http://www.squashedmom.com/2011/08/thinking-bout-blogher11-what-difference.html | (Thinking 'bout) BlogHer11: What a Difference a Ye... |
http://www.squashedmom.com/2011_07_01_archive.html | July |
http://www.squashedmom.com/2011/07/soc-sunday-whew.html | SOC Sunday: Whew! |
http://www.squashedmom.com/2011/07/snss-family-mosaic.html | SNSS: A Family Mosaic |
http://www.squashedmom.com/2011/07/nine-years-and-counting.html | Nine Years and Counting |
http://www.squashedmom.com/2011/07/nearly-there.html | Nearly There |
http://www.squashedmom.com/2011/07/wordless-wednesday-counting-up-to-9.html | Wordless Wednesday: Counting up to 9 |
http://www.squashedmom.com/2011_06_01_archive.html | June |
http://www.squashedmom.com/2011_05_01_archive.html | May |
http://www.squashedmom.com/2011_04_01_archive.html | April |
http://www.squashedmom.com/2011_03_01_archive.html | March |
http://www.squashedmom.com/2011_02_01_archive.html | February |
http://www.squashedmom.com/2011_01_01_archive.html | January |
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http://www.squashedmom.com/2010_11_01_archive.html | November |
http://www.squashedmom.com/2010_10_01_archive.html | October |
http://www.squashedmom.com/2010_09_01_archive.html | September |
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